罕见病-话题@MedSci

#罕见病#

70篇内容 | 7665人围观

关注话题

话题活跃用户

#插入话题

插入图片

最新最热

[GetTopicListResponse(id=904157, encodeId=8ac690415e5f, content=<a href='/topic/show?id=e3f910406898' target=_blank style='color:#2F92EE;'>#红斑性肢痛症#</a>是一种<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a>, objectTitle=关注罕见病“红斑性肢痛症”：FDA授予ATX01孤儿药称号, objectType=article, longId=195522, objectId=3d1519552267, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/202069/1591665761757_5295902.jpeg, objectUrl=/article/show_article.do?id=3d1519552267, replyNumber=0, likeNumber=156, createdTime=2020-12-02, rootId=0, userName=heli0118, userId=21015, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=3d1519552267, moduleTitle=关注罕见病“红斑性肢痛症”：FDA授予ATX01孤儿药称号, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=3d1519552267)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=900811, encodeId=00749008114a, content=<a href='/topic/show?id=370215539f6' target=_blank style='color:#2F92EE;'>#RNAi疗法#</a>多用于<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a>，如这个急性<a href='/topic/show?id=833c8120150' target=_blank style='color:#2F92EE;'>#肝卟啉症#</a> , objectTitle=FDA批准Alnylam的RNAi疗法givosiran治疗罕见遗传病——急性肝卟啉症, objectType=article, longId=183486, objectId=889518348636, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/webeditor/uploadfile/201911/20191123154801947.jpg, objectUrl=/article/show_article.do?id=889518348636, replyNumber=0, likeNumber=214, createdTime=2020-11-20, rootId=0, userName=lovetcm, userId=7a3710, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=889518348636, moduleTitle=FDA批准Alnylam的RNAi疗法givosiran治疗罕见遗传病——急性肝卟啉症, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=889518348636)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=882871, encodeId=03528828e1a2, content=<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a><a href='/topic/show?id=67902456078' target=_blank style='color:#2F92EE;'>#亨特综合征#</a>，即<a href='/topic/show?id=67f310386631' target=_blank style='color:#2F92EE;'>#II型黏多糖贮积症#</a>药物艾度硫酸酯酶β注射液上市，祝贺！, objectTitle=亨特综合征新药「艾度硫酸酯酶β注射液」在中国获批, objectType=article, longId=200288, objectId=8e652002888f, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/202094/1599233199718_2119349.jpg, objectUrl=/article/show_article.do?id=8e652002888f, replyNumber=0, likeNumber=207, createdTime=2020-09-05, rootId=0, userName=1381abdab4m, userId=f0f41699279, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=8e652002888f, moduleTitle=亨特综合征新药「艾度硫酸酯酶β注射液」在中国获批, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=8e652002888f)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=808619, encodeId=8ac9808619d3, content=<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a><a href='/topic/show?id=75cfe9561c4' target=_blank style='color:#2F92EE;'>#罕见病新药#</a>, objectTitle=Arimoclomol治疗丙型尼曼-皮克病：已完成新药申请, objectType=article, longId=197908, objectId=a82319e90846, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/2020722/1595384315987_5295902.jpeg, objectUrl=/article/show_article.do?id=a82319e90846, replyNumber=0, likeNumber=191, createdTime=2020-08-13, rootId=0, userName=docwu2019, userId=a12645, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=a82319e90846, moduleTitle=Arimoclomol治疗丙型尼曼-皮克病：已完成新药申请, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=a82319e90846)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=799496, encodeId=fba1e9949663, content=这是非常少见的肺内肿瘤。<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a>, objectTitle=原发性肺滑膜肉瘤1例, objectType=article, longId=196350, objectId=7a1b1963508c, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/2020623/1592890951059_2202541.png, objectUrl=/article/show_article.do?id=7a1b1963508c, replyNumber=0, likeNumber=177, createdTime=2020-06-23, rootId=0, userName=lovetcm, userId=7a3710, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=7a1b1963508c, moduleTitle=原发性肺滑膜肉瘤1例, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=7a1b1963508c)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=602441, encodeId=77b060244184, content=<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a>mark，Still病, objectTitle=FDA批准Still病的首款药物：诺华的白细胞介素-1单抗canakinumab, objectType=article, longId=196063, objectId=e34d196063ce, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/images/20200617/cd979518bbac4a0faa9eeed103391b13.jpg, objectUrl=/article/show_article.do?id=e34d196063ce, replyNumber=0, likeNumber=199, createdTime=2020-06-17, rootId=0, userName=lovetcm, userId=7a3710, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=e34d196063ce, moduleTitle=FDA批准Still病的首款药物：诺华的白细胞介素-1单抗canakinumab, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=e34d196063ce)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=601728, encodeId=0fe8601e285f, content=<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a>很多罕见病在国内都是大量患者群体, objectTitle=盘点——那些越来越不罕见的“罕见病”, objectType=article, longId=194978, objectId=990a1949e844, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/images/20200529/6736c64791e84354b9a3f87b5bdebacf.jpg, objectUrl=/article/show_article.do?id=990a1949e844, replyNumber=0, likeNumber=199, createdTime=2020-06-07, rootId=0, userName=lovetcm, userId=7a3710, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=990a1949e844, moduleTitle=盘点——那些越来越不罕见的“罕见病”, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=990a1949e844)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=601727, encodeId=b502601e2795, content=<a href='/topic/show?id=5a8be955621' target=_blank style='color:#2F92EE;'>#罕见病#</a>有潜力, objectTitle=FDA授予AAV基因疗法PBGM01"孤儿药"称号，治疗婴儿GM1神经节苷脂贮积症, objectType=article, longId=192750, objectId=788f192e507d, topicUrl=null, isHasObj=0, objectCover=https://img.medsci.cn/Random/adhd_children_s20_adhd_symptoms.jpg, objectUrl=/article/show_article.do?id=788f192e507d, replyNumber=0, likeNumber=188, createdTime=2020-06-07, rootId=0, userName=lovetcm, userId=7a3710, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=788f192e507d, moduleTitle=FDA授予AAV基因疗法PBGM01"孤儿药"称号，治疗婴儿GM1神经节苷脂贮积症, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=788f192e507d)], followStatus=false, userIsMember=false, type=1, lengthMark=0)] 梅斯话题小助手

罕见病

2020-05-29

heli0118 (审核中...)

前往app查看评论内容

#红斑性肢痛症#是一种#罕见病#

关注罕见病“红斑性肢痛症”：FDA授予ATX01孤儿药称号

2020-12-02

lovetcm (审核中...)

前往app查看评论内容

#RNAi疗法#多用于#罕见病#，如这个急性#肝卟啉症#

FDA批准Alnylam的RNAi疗法givosiran治疗罕见遗传病——急性肝卟啉症

2020-11-20

1381abdab4m (审核中...)

前往app查看评论内容

#罕见病##亨特综合征#，即#II型黏多糖贮积症#药物艾度硫酸酯酶β注射液上市，祝贺！

亨特综合征新药「艾度硫酸酯酶β注射液」在中国获批

2020-09-05

docwu2019 (审核中...)

前往app查看评论内容

#罕见病##罕见病新药#

Arimoclomol治疗丙型尼曼-皮克病：已完成新药申请

2020-08-13

lovetcm (审核中...)

前往app查看评论内容

这是非常少见的肺内肿瘤。#罕见病#

原发性肺滑膜肉瘤1例

2020-06-23

lovetcm (审核中...)

前往app查看评论内容

#罕见病#mark，Still病

FDA批准Still病的首款药物：诺华的白细胞介素-1单抗canakinumab

2020-06-17

lovetcm (审核中...)

前往app查看评论内容

#罕见病#很多罕见病在国内都是大量患者群体

盘点——那些越来越不罕见的“罕见病”

2020-06-07

lovetcm (审核中...)

前往app查看评论内容

#罕见病#有潜力

FDA授予AAV基因疗法PBGM01"孤儿药"称号，治疗婴儿GM1神经节苷脂贮积症

2020-06-07

科室
- - 订阅+
  - 更多科室
工具
服务